Tuesday, December 09, 2008

16 days till Christmas

It's been a crazy week.

On December 2nd at 9pm my daughter, Chelsea suffered a grand mall (tonic-clonic) seizure. It was the scariest thing I've ever seen.

The dr is trying to get the insurance to authorize an MRI and a referral to a neurologist. She's now on Keppra an anit-seizure medication with awful side effects. The worst side effect she's having right now is the sedation. She takes 250mg (recommended daily dose is 1000mg) at 9pm and it's now 11:33am and she still isn't awake. It makes her sleep for 14 hours or more. I'm only giving her the night-time dose because I don't want her sleeping her life away. She is 20 years old and has a 1 year old son. So until we can get her in to see the neuro I'm working from home.

I don't think I've been this exhausted since my kids were babies. I'm getting up at 5:30 or 6am to take care of Hayden and then when he goes down for a nap around 10am I try to get about an hours worth of work done. Then he's up and hopefully his mom wakes up around noon to take over.

On to better subjects:
Knitting for the holidays. Is anyone getting anything finished? I've been working on that Woodland Shawl since August and I think I'm ready to cast off. I've decided to give it to my mom for Christmas. I made my grandson the cutest pair of mittens out of Malabrigo worsted. I read somewhere that wool mittens are better for little ones because if they get wet, wool will hold in the heat and acrylics will freeze. I don't want my babies fingers freezing, so he got the good stuff.

This Christmas is going to be slim this year. I had big plans, but the funds just aren't there. This has been the worst year and I don't think 2009 looks much better for the 1st quarter. My salary is compensated with a month bonus or commission based on Ebitda percentages. In 2007 my commission checks were in the thousands, this year I think the highest I've gotten for a month is 600. That really hurts when you're used to making one amount and then it drops like that. I think my annual salary for this year is about $15,000 to $20,000 less than last year.
This year will have to be more about love, and being with family than presents.

I hope everyone has a great holiday...be safe.

7 comments:

Michelle said...

Oh my! Thoughts and prayers to your family! Hang in there!
Hugs!

Lupie said...

I am so sorry to hear about your daughter and will keep you and her in my prayers.
We are in the middle of a health problem with my daughter and just don't know what we are dealing with.
When our kids are sick it is draining.
Knitting is helpful.

Miz Minka said...

Hang in there, it'll work out! A friend of mine was diagnosed with epilepsy in her early 20s. Once they figured out the best meds and dosages, she was completely seizure-free and able to lead a normal life these last 20+ years. Chelsea will not always be "sleeping her life away."

Sorry this had to happen in the busy holiday season. My DH and I are doing a no-gifts-Christmas because our income has also gone down substantially this year. But we're looking forward to spending lots of time with friends and loved ones.

Once I'm done with finals next week, I might even get around to doing some knitting again! (Finished objects?? What's that?!)

Hissy Stitch said...

My thought are with you. Bless that doctor for working so hard for you.

pegi said...

What can we say or do to help you?
I know I love my daughters Sooo much,I can't begin to feel the pain you must be going through. But, you are in my thoughts and prayers, and I can see, the thoughts and prayers of many friends in spirit. It will get better...Please, have a blessed and peaceful Christmas.

Roe said...

Hang in there. When I was in my early 20s, I had my first seizure; it took a couple of years for the doctors to figure out that I didn't have epilepsy, but a sleep disorder. I take a very low dosage of a seizure medication that keeps me seizure free, and I haven't suffered any problems. There is always hope. You have people who care out here in cyberspace!

Beverly said...

I am so sorry to hear about your daughter. I will keep your family in my prayers.